Five Questions Facing Families with a Child with Autism Disorders Autism spectrum (ASD )

By Marvie Ellis , MS, CCC- SLP < / span>

Over the years , I have talked with several families of children with autism spectrum disorders on the various challenges they face . These extend to receive emotional support àobtenir last biomedical information .

Five main issues listed in random order, were discussed most often :

  • Insurance
  • social isolation
  • approaches to therapy
  • Support school and
  • Systems /social support.
  • Denial , it is the opinion of many families who came AMA private pediatric practice and do not represent all families and their opinions. Some of these questions may not Being suitable for families of children with autism to high functioning , but are important nonetheless.

    Among the main concerns is insurance. Some families have a difficult time getting their insurance plans to cover specific treatments. Examples of treatment are biomedical , Hippotherapy , and music, art and behavioral therapy.

    Some plans offer a limited number of visits , ranging from 20 - 60 visits in a calendar year . These visits include a combination of speech-language services , occupational and physical therapy . Other plans do not cover services of speech-language if a child is above the three EMB . May even indicate that the services are covered only if due to damage /injury to brain , not developmental delay or autism .

    In addition, insurance companies limit the number of suppliers in a given region . Consequently, if there are two providers in your area using the insurance of a family, we can only speak of children with ASD . The waiting list was long Being several months. The problem of obtaining insurance for services and to find suppliers is even worse if a family has Medicaid as their only insurance.

    The issue of social isolation results if the family, friends, and neighbors avoid opportunities to interact and engage each other with a family a child who is diagnosed with ASD , probably the fear or lack of education. Sometimes the behavior of children with ASD are unpredictable and frightening to people who are unfamiliar with the disorder .

    In addition , parents of typically developing children do not know how to engage a child with ASD or parents of the child. Why ? Since children with ASD do not have a clear syndrome and expectations of engagement.

    Even people who have some awareness about autism can only know the medical definition . The general population does not routinely interact with individuals with ASD . However, recently there has been an effort by the mainstream media to make autism more widely known . The focus is in biomedical at this time , which is a good start.

    Treatment approaches have another major issue for families. Not all therapists are trained in the various techniques used to enhance the skills of the child with ASD . Parents need to know that it is still appropriate to ask therapists about their level of interest and training in working with this population.

    Well trained speech-language pathologists and occupational therapists should Be aware of sensory integration , oral motor therapy , the devices / [ device ] augmentative of sign language , the development of muscle tone , and play - based therapy , such as system of e communication image exchange ( PECS ) and applied Behaviour Analysis ( ABA) . They should also know the importance of additional treatment through referral options , such as psychological therapy services, family counseling , nutrition, occupational and physical activities social group , stimulation therapy , Hippotherapy hearing , and music, art , vision, and water therapy .

    According to many schools a child advocate services are available and they educate teachers and helpers about ASD , parents can find appropriate services difficult to obtain for the child. Some school districts provide special training courses for teachers of autism and autism certified specialists to monitor the population.

    Areas that do not provide this important training can place children with ASD in a school setting with inadequate engagement for children during a typical school day . Teachers and helpers without the knowledge of the importance of a sensory system can provide a child with ASD foods that can cause adverse reactions and aggressive behavior .

    Some school districts offer training a Parent Teacher meetings and offer in- service training. This training is extremely important for parents of children who are newly diagnosed with ASD . School systems who do not offer this service overlook the key people in the growth and social development of the child.

    The parents of a child with ASD rarely have the opportunity to go a public park and on play dates. On have a relaxing experience with other parents and children . The morning mother out and day programs for children usually do not allow young people with ASD, causing these parents to being denied support, personnel, liability issues , and / or training causes this to occur.

    Children with ASD often can not join groups, gym or karate classes or go to the movies or to the mall . Parents do not have places where they can take their child without it becoming an expensive event. Some relief is offered by non-profit organizations like Abut.

    While some school and private practice areas offer special walks and absorb the costs because of their commitment to families, parents of children with ASD usually find themselves in the situation without an outlet for their child or a social break for themselves . One parent told me , " We get to have a date every year and a half. "

    Families of children with ASD need the support of all those involved in their lives, professionally or personally . Hopefully , we can enlighten those who are not aware of these issues and be assured that their voice is heard.

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